About MND

Many people with MND die without having the right care, not having a suitable wheelchair, not having the support to communicate.

We have got to set a standard so that people like us are listened to and treated with the respect and dignity we deserve.

We have got to stop the ignorance surrounding this disease and have to make sure that when a patient is first diagnosed with MND, they must have access to good, coordinated care and services.

One week waiting for an assessment or a piece of equipment is like a year in most people’s lives, because they are an everyday essential to help us live as normal a life as possible and die with dignity.

Liam Dwyer, who is living with MND

About motor neurone disease (MND):

  • MND is a fatal, rapidly progressing disease that affects the brain and spinal cord.
  • It attacks the nerves that control movement so muscles refuse to work. Sensory nerves are not usually affected.
  • It can leave people locked in a failing body, unable to move, talk and eventually breathe.
  • It affects people from all communities.
  • It kills around a third of people within a year of diagnosis, and more than half within two years.
  • It affects up to 5,000 adults in the UK at any one time.
  • It has no cure.

About the Motor Neurone Disease Association:

The MND Association was founded in 1979 by a group of volunteers with experience of living with or caring for someone with MND. Since then, we have grown significantly, with an ever-increasing community of volunteers, supporters and staff, all sharing the same goal – to support people with MND and everyone who cares for them, both now and in the future.

We are the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.

Champion the Charter on your doorstep is a MND Association initiative.

For more information about MND and the MND Association


Please make a positive difference to the lives of people with MND and their carers in your community.

Download or order campaign materials to help you get started

Visit our How To Help section to find out how you can get involved